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2 . "Glad your back. You're an inspiration! Love trading with you. "
Posted by qualitycare1987 on Aug-10-17 at 09:02 PM (Eastern)
Posted on Aug-10-17 at 09:02 PM (Eastern) by

>Posted on Aug-10-17 at 06:05 PM (Eastern)
>by realized it has been
>an awful long time since I
>posted much here. I have been
>pretty much keeping up my site
>and trading with people who have
>signed up for emails when it
>gets updated. so For those of
>you who remember me and don't
>visit my trading site, here's an
>update on what has been going
>on with me lately.
>Well, after 8 years, I am still
>in treatment for my ovarian cancer.
>Just can't seem to get it
>under control. But fortunately, thanks to
>lots and lots of chemotherapy, it
>has NOT spread at all in
>all these years. I have basically
>been doing 6-9 months of chemo,
>then 3 months off to recover
>since I was diagnosed in 2009.
>I did try some newer treatments, one
>was a pill form of chemotherapy
>versus the infusions I usually do.
>I loved it, but unfortunately it
>messed up my kidney function, so
>doctor pulled me off that, gave
>me a few months to see
>if it would get better (it
>did, but is still compromised, so
>she watches it closely. Took me
>2 months to find a kidney
>specialist to see me so I
>could get approval from a specialist
>before my oncologist would try any
>more chemo, which was very frustrating,
>since the chemo is what has
>been keeping things under control, and
>I was worried that it would
>get bad. It grew quite a
>bit during that break, but the
>kidney doctor said chemo was fine
>as long as my kidney function
>stayed at a certain level, and
>so far it has.
>Next I just tried a new drug
>that also was a pill, called
>a PARP inhibitor. Newly approved in
>December by the FDA, it is
>very specialised. It is only for
>women with ovarian cancer who have
>the genetic mutation for both ovarian
>and breast cancer, have done at
>least 6 months of platinum based
>chemotherpay and that the platinum chemo
>seems to work on the cells.
>It is designed to attack only
>those cells with that particular genetic
>mutation. So, the basic idea is
>that for most women, it kept
>things from ever growing and for
>some lucky women, at actually gets
>rid of all the mutated cells
>and you are cancer free. Unfortunately
>for me, I did not fit
>either category, instead after 2 months
>I had dramatic growth, the most
>ever since I started this lovely
>roller coaster.
>So now I am back on the
>infusion chemotherapy, using the one drug
>that has always been successful for
>me, and added another one to
>the mix. New schedule is one
>Monday of chemo with 2 drugs,
>the following Monday with just 1,
>then back for an injection of
>neulasta to make my bones make
>blood cells faster(nasty stuff, causes severe
>bone pain and severe flu like
>symptoms for 2-3 days). I haven't
>had that in a while, not
>looking forward to it next week.
>When I was getting it regularly,
>it eventually got to the point
>where it only last 1 day
>and was becoming tolerable, it didn't
>keep me from doing anything, just
>really painful. I'm hoping I still
>have that tolerance.
>I've also had a good summer with
>my family. My oldest son graduated
>with a Bachelors of Music in
>May, and my youngest son graduated
>from high school in June.We celebrated
>with a small family party for
>the oldest (about 50 people) and
>a huge party for my youngest
>(150 people). My mom, aunt and
>2 friends were tons of help,
>i bought the food but they
>all made it. Had a lot
>of help and it just was
>a really nice chance to get
>to see a bunch of relatives
>and friends who you don't often
>get a chance to visit.
>We also had a 90th birthday party
>for my father-in-law. Much smaller affair,
>even though hubby is one of
>5 kids who are all married
>with children, it was fewer people
>than my grad parties. HIs family
>just doesn't do "extended" family at
>My husband and I also celebrated our
>30th wedding anniversary this summer.
>Our only real bad time this summer
>was my mother-in-law passed away suddenly,
>the week before my son's party.
>Really hard on my husband, and
>of course, we spent days over
>there when she passed, getting funeral
>arrranged and then 2 days at
>the funeral home. This made it
>even harder for me to get
>ready for my son's party and
>my husband was simply to preoccuppied
>and sad, but my family and
>friends were great, came over to
>do setup and help me get
>my yard cleaned up and all
>the hard work.
>We are truly blessed with some wonderful
>family and friends in our life.
>They are my support group who
>keep me going through all of
>this with the love, help, and
>so anyway, those are the highlights of
>my summer!
> Check out my site
>at Thanks, Sue Edelmann

qualitycare1987 joined in 9/2007
10251 posts
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