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7 . "Hoping & praying for your son. "
Posted by qualitycare1987 on Sep-26-17 at 09:28 PM (Eastern)
Posted on Sep-26-17 at 09:28 PM (Eastern) by 97.77.92.34

>Posted on Sep-25-17 at 11:39 PM (Eastern)
>by 68.194.157.176In memory of my beloved
>beautiful brother Sonny whom earned
>his wings in heaven 10-26-65
> 5-4-
>
>As many here may know our
>son Thomas Peter whom is 29
>was born with many severe heart
>problems. He had his first
>open heart surgery on 4-5-88.....he was
>only three weeks old. When he
>was born he was full term
>excellent weight great color....However that all
>changed in days....his breathing was very
>heavy and even to eat or
>go to the bathroom was a
>strain on him. We immediately took
>him to his baby doctor whom
>at the time was a Father
>and Daughter Doctor team.....Dr Dino and
>Pamela Diello.....they examined our baby and
>thought his breathing was a bit
>off as well and also they
>thought he had a heart murmer
>which he does. Just to be
>on the safe side they sent
>us straight to the Childs Hospital
>Pediactric Hospital and there we met
>the most wonderful Baby Heart Doctor
>in the world Dr Angela Romano......she
>has been in Tom's life ever
>since...Anyway they did many tests and
>found 4 heart issues....He again had
>his first open heart at 3
>weeks ago right from that visit
>Tom was immediately admitted into the
>Hospital......they repaired his a torn rip
>in his value . In all
>Thomas was in the hospital for
>3 weeks. Then at 9 months
>old he had open heart again
>to repair tiny holes in his
>heart. Then at 2 years old
>he as angioplasty to repair his
>aortic stenosis.....then at 8 he had
>it done again. Now from that
>point he has gone to his
>cardiologist every 6 months never missing
>a appointment. Each time he has
>blood work.....a physical ......a ekg......a echo
>cardiogram and a stress test.....Our precious
>baby boy now a man but
>still forever our beautiful baby boy
>has been through so much in
>his life. So at this point
>the Doctors always told us one
>day his valve will close to
>the point where they would have
>to intervene and repair his valve
>either with a pig valve or
>a mechanical valve.....They said maybe when
>he 13 then 18 then 21
>then 25....well at this last visit
>they determined by the time he
>is 30 which will be 3/8/18.....he
>will need surgery...So we are asking
>for prayers because tomorrow he goes
>for his check-up. They believe he
>has done well and that he
>would be a excellent candidate for
>a tissue repair because we and
>him have always taken excellent care
>with all he has done with
>his medications and visits and not
>being allowed to play for any
>school teams. Otherwise like my nephew
>Michael they are first cousins......his dad
>and me are siblings. Michael was
>not a candidate and on 8-6-13
>he had to have a mechanical
>valve which is serious. He will
>forever need to take 5 medications.....rejection
>medication and blood work once a
>week and be on blood thinners
>and no physical activity at all.
>So we are hoping and praying
>that our son receives excellent news
>and when this surgery will happen....So
>from one mom to all the
>moms here please keep our son
>Thomas in your prayers for tomorrow
>thanks and peace.....xoxoxxo 02....a million years
>can pass and there will never
> be a better brother...xoxoxo


qualitycare1987 joined in 9/2007
9945 posts
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