2 . "Glad your back. You're an inspiration! Love trading with you. "
Posted by qualitycare1987 on
Aug-10-17 at 09:02 PM (Eastern)
Posted on Aug-10-17 at 09:02 PM (Eastern) by 220.127.116.11
>Posted on Aug-10-17 at 06:05 PM (Eastern) >by 18.104.22.168I realized it has been >an awful long time since I >posted much here. I have been >pretty much keeping up my site >and trading with people who have >signed up for emails when it >gets updated. so For those of >you who remember me and don't >visit my trading site, here's an >update on what has been going >on with me lately. >Well, after 8 years, I am still >in treatment for my ovarian cancer. >Just can't seem to get it >under control. But fortunately, thanks to >lots and lots of chemotherapy, it >has NOT spread at all in >all these years. I have basically >been doing 6-9 months of chemo, >then 3 months off to recover >since I was diagnosed in 2009. > >I did try some newer treatments, one >was a pill form of chemotherapy >versus the infusions I usually do. >I loved it, but unfortunately it >messed up my kidney function, so >doctor pulled me off that, gave >me a few months to see >if it would get better (it >did, but is still compromised, so >she watches it closely. Took me >2 months to find a kidney >specialist to see me so I >could get approval from a specialist >before my oncologist would try any >more chemo, which was very frustrating, >since the chemo is what has >been keeping things under control, and >I was worried that it would >get bad. It grew quite a >bit during that break, but the >kidney doctor said chemo was fine >as long as my kidney function >stayed at a certain level, and >so far it has. >Next I just tried a new drug >that also was a pill, called >a PARP inhibitor. Newly approved in >December by the FDA, it is >very specialised. It is only for >women with ovarian cancer who have >the genetic mutation for both ovarian >and breast cancer, have done at >least 6 months of platinum based >chemotherpay and that the platinum chemo >seems to work on the cells. >It is designed to attack only >those cells with that particular genetic >mutation. So, the basic idea is >that for most women, it kept >things from ever growing and for >some lucky women, at actually gets >rid of all the mutated cells >and you are cancer free. Unfortunately >for me, I did not fit >either category, instead after 2 months >I had dramatic growth, the most >ever since I started this lovely >roller coaster. >So now I am back on the >infusion chemotherapy, using the one drug >that has always been successful for >me, and added another one to >the mix. New schedule is one >Monday of chemo with 2 drugs, >the following Monday with just 1, >then back for an injection of >neulasta to make my bones make >blood cells faster(nasty stuff, causes severe >bone pain and severe flu like >symptoms for 2-3 days). I haven't >had that in a while, not >looking forward to it next week. >When I was getting it regularly, >it eventually got to the point >where it only last 1 day >and was becoming tolerable, it didn't >keep me from doing anything, just >really painful. I'm hoping I still >have that tolerance. >I've also had a good summer with >my family. My oldest son graduated >with a Bachelors of Music in >May, and my youngest son graduated >from high school in June.We celebrated >with a small family party for >the oldest (about 50 people) and >a huge party for my youngest >(150 people). My mom, aunt and >2 friends were tons of help, >i bought the food but they >all made it. Had a lot >of help and it just was >a really nice chance to get >to see a bunch of relatives >and friends who you don't often >get a chance to visit. >We also had a 90th birthday party >for my father-in-law. Much smaller affair, >even though hubby is one of >5 kids who are all married >with children, it was fewer people >than my grad parties. HIs family >just doesn't do "extended" family at >all. >My husband and I also celebrated our >30th wedding anniversary this summer. >Our only real bad time this summer >was my mother-in-law passed away suddenly, >the week before my son's party. >Really hard on my husband, and >of course, we spent days over >there when she passed, getting funeral >arrranged and then 2 days at >the funeral home. This made it >even harder for me to get >ready for my son's party and >my husband was simply to preoccuppied >and sad, but my family and >friends were great, came over to >do setup and help me get >my yard cleaned up and all >the hard work. >We are truly blessed with some wonderful >family and friends in our life. >They are my support group who >keep me going through all of >this with the love, help, and >prayers. >so anyway, those are the highlights of >my summer! > Check out my site >at http://suescoupons.site123.me Thanks, Sue Edelmann